Clik here to view.
This disease snuck into his DNA and put us in a war we didn’t ask to fight.
Day 10 of Blogging for TSC Awareness by guest blogger Dorothy Tebbetts (Austin, Texas) It’s that time of the year for “Tuberous Sclerosis” awareness. Last year I blogged our “story” of the diagnosis....
View ArticleClik here to view.
The Great Seizure Wait
Day 12 of Blogging for TSC Awareness by guest blogger Hannah Lorraine (St. Louis, Missouri) I was standing in the nail polish aisle in CVS when I got the call. I rarely ever paint my nails, so that...
View ArticleClik here to view.
Bailey
Day 13 of Guest Blogging for TSC Awareness by Becca Patterson (Greenwood, Mississippi) My name is Bailey and I am 5 years old. I was diagnosed with TSC when I started having seizures at 5 months. I’ve...
View ArticleClik here to view.
TSC and Me
Day 16 of Blogging for TSC Awareness by Victoria Newberry (Texas) As I prepare myself to write this, I thought about how to represent my son and I realized that I can’t do it. I can’t write for my son...
View ArticleClik here to view.
Grateful
Day 19 of Blogging for TSC Awareness by Shannon Hanks-Grandia (Riverside, California) Twelve years ago I first heard the words tuberous sclerosis complex and my life was forever changed. I do not have...
View ArticleClik here to view.
For the first time in my life, things were not in my control.
Day 21 of Blogging for TSC Awareness by guest blogger Debdatta Bhattacharya (Portland, Oregon) I had always been in control of my life. I faced challenges but I knew if I work hard I will get over...
View ArticleClik here to view.
A Glimpse into the Journal of a TSC Mom
Day 23 of Blogging for TSC Awareness by guest blogger Kaci Kennedy (Woodward, Iowa) A glimpse of my last two days thanks to TSC. May 17th, 2015. In to do mode. Pack the van. Must hydrate Porter. Push...
View ArticleClik here to view.
Not the Healing I Wanted, The Healing We Needed
Day 26 of Blogging for TSC Awareness by guest blogger Katie Nguyen (Rancho Santa Margarita, California) When I was a teenager I would quietly slip into my sister’s bedroom at night and pray for God to...
View ArticleClik here to view.
Identical Twins Diagnosed With TSC
Day 27 of Blogging for TSC Awareness by guest blogger Jobina Antochow-Piekema (Clairmont, Alberta, Canada) At our very first ultrasound we were given the great news we were expecting mono/di...
View ArticleClik here to view.
Scars Do Not Define Us
Day 28 of Blogging for TSC Awareness by guest blogger Katie Eliot (Durham, England) Hi! I’m Katie, I’m 35 and I have TSC. My TSC story should have begun when I was a baby, but a series of events put...
View ArticleClik here to view.
For all we have lost, there are great treasures that remain.
Day 29 of Blogging For TSC Awareness by guest blogger Rebecca Thereault For all we have lost, there are great treasures that remain. Tuberous Sclerosis Complex (TSC) hijacked our daughter’s genome....
View ArticleClik here to view.
How could I have had TSC my whole life and not known it?
Day 31 of Blogging for TSC Awareness by guest blogger Leanne Cirigliano Briand August 27, 2014 changed my entire life. It was just three weeks after my husband and I were married when I had a seizure...
View ArticleClik here to view.
The Great Seizure Wait
Day 12 of Blogging for TSC Awareness by guest blogger Hannah Lorraine (St. Louis, Missouri) I was standing in the nail polish aisle in CVS when I got the call. I rarely ever paint my nails, so that...
View ArticleClik here to view.
Traveling to the Novartis Blogging Conference for TSC
I haven’t blogged much over the last year, except to rage over my pet political issue, so imagine my surprise when I was invited to the Novartis Blogging Summit for TSC. *Insert legal disclaimer...
View ArticleClik here to view.
I disappeared because of weed.
Shameless clickbait title, but it’s technically true. There are actually two major reasons I’ve been pretty quiet on the blog for the past year. 1. Burnout. I think I just hit a wall talking about TSC...
View Article
