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TSC and Me
Day 16 of Blogging for TSC Awareness by Victoria Newberry (Texas) As I prepare myself to write this, I thought about how to represent my son and I realized that I can’t do it. I can’t write for my son...
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Grateful
Day 19 of Blogging for TSC Awareness by Shannon Hanks-Grandia (Riverside, California) Twelve years ago I first heard the words tuberous sclerosis complex and my life was forever changed. I do not have...
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For the first time in my life, things were not in my control.
Day 21 of Blogging for TSC Awareness by guest blogger Debdatta Bhattacharya (Portland, Oregon) I had always been in control of my life. I faced challenges but I knew if I work hard I will get over...
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A Glimpse into the Journal of a TSC Mom
Day 23 of Blogging for TSC Awareness by guest blogger Kaci Kennedy (Woodward, Iowa) A glimpse of my last two days thanks to TSC. May 17th, 2015. In to do mode. Pack the van. Must hydrate Porter. Push...
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Not the Healing I Wanted, The Healing We Needed
Day 26 of Blogging for TSC Awareness by guest blogger Katie Nguyen (Rancho Santa Margarita, California) When I was a teenager I would quietly slip into my sister’s bedroom at night and pray for God to...
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Identical Twins Diagnosed With TSC
Day 27 of Blogging for TSC Awareness by guest blogger Jobina Antochow-Piekema (Clairmont, Alberta, Canada) At our very first ultrasound we were given the great news we were expecting mono/di...
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Scars Do Not Define Us
Day 28 of Blogging for TSC Awareness by guest blogger Katie Eliot (Durham, England) Hi! I’m Katie, I’m 35 and I have TSC. My TSC story should have begun when I was a baby, but a series of events put...
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For all we have lost, there are great treasures that remain.
Day 29 of Blogging For TSC Awareness by guest blogger Rebecca Thereault For all we have lost, there are great treasures that remain. Tuberous Sclerosis Complex (TSC) hijacked our daughter’s genome....
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Traveling to the Novartis Blogging Conference for TSC
I haven’t blogged much over the last year, except to rage over my pet political issue, so imagine my surprise when I was invited to the Novartis Blogging Summit for TSC. *Insert legal disclaimer...
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I disappeared because of weed.
Shameless clickbait title, but it’s technically true. There are actually two major reasons I’ve been pretty quiet on the blog for the past year. 1. Burnout. I think I just hit a wall talking about TSC...
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